Preventing Sickle Cell Disease and Preserving Fertility
Sickle cell disease impedes blood flow to all organs including the ovaries and testicles. This means that patients with SCD are at increased risk for infertility. In addition, one of the mainstay drugs for treatment of SCD is Hydroxyurea. This also can cause infertility. This drug is sometimes started during infancy. Both bone marrow transplantation […]
The Psychology of Sickle Cell Disease
Since February of this year, I have been trying to educate people about the “medical” option of preventing Sickle Cell Disease. I have sent out maybe more than 200 emails to many people including President Joseph Biden and Vice-President Kamala Harris. I sent emails or letters to congress people, Sickle Cell Non-Profits, Black Lives Matter […]
Politics of Sickle Cell Disease
If your child screens positive for the sickle cell trait, they will be referred to a branch of the Sickle Cell Disease Association of America (SCDAA). At these sites, the families are not taught about prevention using in-vitro fertilization and preimplantation genetic testing (IVF-PGT). However, if your child screens positive for the Cystic Fibrosis trait, […]
Sickle Cell Disease by the numbers
It is estimated that Sickle Cell Disease (SCD) affects about 20,000,000 people worldwide. The NIH believes about 100,000 people in the United States have SCD. It occurs in 1 out of every 365 black births in the US and about 1 in 13 black Americans have the trait. If both parents have the trait, for […]
Preventing Sickle Cell Disease
For some reason, many world class medical institutions say that because Sickle Cell Disease (SCD) is hereditary, it cannot be prevented. If you inherit the genes for SCD from both of your parents, it is true that you will have SCD. However, what I am talking about is preventing SCD in the next generation. Two […]